Adult Cystic Fibrosis Association
The USACFA provides a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the latest treatments and research to fight it and has a forum for CF adults to communicate to each other.
Adult Patient Information, professional information, news, research Information
Created: April 25, 2005 MG
Reviewed: May 16, 2005
Updated: May 16, 2005
Boomer Esiason Foundation
The Boomer Esiason Foundation (BEF) is a nonprofit organization that provides financial support to research aimed at finding a cure for cystic fibrosis. The Foundation works to educate and increase awareness of cystic fibrosis and to provide a better quality of life for those affected by cystic fibrosis.
The Foundation has a CF treatment locator, all you do is enter your zip code and treatment centers nearest to you will be listed.
Patient Education, patient advocacy, treatment locator, professional information, news
Created: April 25, 2005 MG
Reviewed: May 16, 2005
Updated: May 16, 2005
Cystic Fibrosis Foundation
The mission of the Cystic Fibrosis Foundation is dedicated to finding a means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. This site has a map to locate treatment centers and support groups.
Patient Information, Professional Information, Treatment
Locator, Patient Advocacy
Created: April 25, 2005 MG
Reviewed: May 16, 2005
Updated: May 16, 2005
Cystic-L
CYSTIC-L is a free email service dedicated to the exchange of information and support specific to cystic fibrosis. There are over 600 list subscribers sending a total of around 20-60 messages per day.
Patient Information, family information, professional Information
Created: April 25, 2005 MG
Reviewed: May 16, 2005
Updated: May 16, 2005
Genetics Home Reference
Genetics Home Reference is the National Library of Medicine's web site for consumer information about genetic conditions and the genes or chromosomes responsible for those conditions.
Patient information, professional information
Created: April 25, 2005 MG
Reviewed: May 16, 2005
Updated: May 16, 2005
National Heart Lung and Blood Institute
Patient Recruitment
If you have been diagnosed with cystic fibrosis (CF), you may be eligible to participate in a research study at the NIH Clinical Center. The purpose of this research is to improve understanding of CF. Those with CF 9 years of age and older will undergo a pulmonary evaluation at the NIH Clinical Center in Bethesda, MD.
There is no cost to you for travel or medical testing, and should you wish, information from your evaluation will be provided for your physicians.
Patient information, professional information
Created: April 25, 2005 MG
Reviewed: May 16, 2005
Updated: May 16, 2005
Medline Plus CF Video
Informative video on Cystic Fibrosis
Patient information, professional information
Created: April 25, 2005 MG
Reviewed: May 16, 2005
Updated: May 16, 2005
